Giving assistance to haemophiliacs infected with HIV through contaminated
blood products and their families in the United Kingdom


The Macfarlane Trust (MFT) was set up in 1988 by the British Government to support people with haemophilia who were infected with HIV as a result of contaminated NHS blood products, and their spouses, parents, children and dependants. During the late 1970s and early 1980s more than 1,200 people with haemophilia were infected with HIV through their clotting factor treatment. A large proportion of people were also infected with Hepatitis C.

From 1 November 2017 the Macfarlane Trust will no longer provide support to those with haemophilia who were infected with HIV as a result of contaminated blood, and their families.

From 1 November 2017 support will be provided by a separate governmental organisation in each of the four UK countries, depending on where an individual was infected:


England:   NHS Business Services Authority
Tel:  0300 330 1294
Email:  nhsbsa.eibss@nhs.net 
Website: www.nhsbsa.nhs.uk/eibss

Wales:  Velindre NHS Trust
Tel: 02920902280
Email: wibss@wales.nhs.uk
Website: wibss.wales.nhs.uk

Northern Ireland:  Northern Ireland Regional Business Services Organisation
Tel:  02895 363817 
Email:  bso.ibss@hscni.net

Scotland - support for those infected in Scotland has been provided by NHS National Services Scotland since 1 April 2017
Tel:  0131 275 6754
Email:  NSS.SIBSS@nhs.net 
Website: https://nhsnss.org/services/practitioner/medical/scottish-infected-blood-support-scheme

The Macfarlane Trust is currently running a one-off grants programme to provide grants for specialist equipment, and health- and mobility-related repairs and improvements to property.  Applications are open to all beneficiaries in England, Northern Ireland, Scotland and Wales who were registered with the Macfarlane Trust before the transfer of services to the respective new scheme administrators in the four UK countries.

For queries relating to this grants programme please contact 0207 808 1171 or reserve@macfarlane.org.uk.  This is the only financial support that the Trust is able to provide during this period.  Requests for other support should be directed to the relevant organisation in England, Wales, Northern Ireland or Scotland listed above.

 



The Macfarlane Trust    Alliance House    12 Caxton Street    London    SW1H 0QS
Registered Charity Number 298863    Information Commissioners Office Registration Number Z986535X